Saturday, June 27, 2020

Back to Manhattan


So, after seven years, I made it back to Manhattan. Out of Brooklyn and back into the part of the city that only exists in black and white. We made it actually -- myself and my wife, Dhanushka.

And we moved incredibly close to where I lived when I first came to the city after college. It was the upper east side, just 20 blocks south of SpaHa on 2nd avenue. There’s a great halal cart outside our apartment. Not sure if the guy bathes in his own cooking oil. I can only hope.

And yes, as hard as it might be to believe, I committed to somebody. Forget about my past commitments to the Mets or to eating handfuls of double-stuffed Oreos every night after dinner. This was a person. This was beautiful Dhanushka.

I married her. I loved her more than anything else in the world. She had a smile that could light up the darkest room. A spirit and love of living that you could see within the first couple minutes of meeting her. Nothing seemed to bother her. I felt better every time she was around.

Although we loved our new home, it wasn’t a move we planned. We were there out of necessity.

Before, we were living in a grand building in up and coming Gowanus, right next to the canal. We were excited about it. The neighborhood was hip, the bars were cool, breweries were aplenty. Friends came to visit. They loved our rooftop, the welcoming lobby and all the new, strange restaurants you read about in Eater but never think you’ll see in person.

Oftentimes, on warm nights, the two of us would stroll, hand-in-hand, down the roads of Carroll Gardens – staring at the townhouses and wondering how much each one might cost. Wondering if, someday, somehow, we might ever live in one of them.

I even remember the first time we came to the neighborhood and decided to move there together. We went to an old, woodsy-looking candle-lit wine bar, hidden away so well in the dark and among the nearby homes that you wouldn’t know it was there if you weren’t looking for it. Fireflies, fireflies in New York City, were floating through the air. It felt like magic. We could stay here forever, I thought to myself. Our future kids would love it (Maya would be her name if it was a girl, although I preferred the Ghetto Superstar spelling Mya). They’d hate us if we didn’t give it a shot. What if we stayed here forever?

But then things suddenly became different. After weeks of massive headaches, my wife, my girl – the one I met one incredibly hazy night at Williamsburg’s Union Pool six years before – was sick. Terminally. She had Glioblastoma. Brain cancer. The worst of the worst. At 27 years old.

At first, we stayed in Gowanus. The surgery knocked out the first tumor. She came out of it well, eating chocolate chip cookies by the busload. She had six weeks of chemotherapy and radiation while somehow still working every day. We woke up every morning to do the half hour drive to Weill Cornell on the upper east side – listening to songs and podcasts and anything else to take our minds off what we were doing. We learned to appreciate the beauty of the Brooklyn Bridge and sunrises coming up and over the East River – lighting up the city for our daily approach.

Dhanush finished up the six weeks like a breeze. We knew how serious it all was, but besides losing some strands of hair on the back of her head, she was fine. We were fine. It’s weird and probably wrong, but I counted on her to keep me strong and she was impenetrable. She refused to be knocked down.

We had a few months of trips and fun. We went to our favorite hotel: Victoria House in Belize. We went on sunset cruises, we drank margaritas, we spent days just sitting in the sun – soaking it all in. 


We went to Bermuda and Martha’s Vineyard. All the while, she was continuing chemo. It made her sick but you wouldn’t have known it.

And then, in June, an MRI showed it had returned to her spine. Everyone cried. It’s never a place you want cancer to go.

We were told we had to move to Boston to undergo the most intense radiation anybody can get: Cerebral-spinal. The entire brain and entire spine for 5 weeks at Mass General. But right before, we decided to get married.

We had planned on doing the wedding in Newport in September, but that was, of course, all up in the air now. It crushed Dhanushka – a person who loved friends and family more than anything -- not to have big ceremony and party, but the day at the Brooklyn courthouse and afterwards turned out to be just as memorable.



Boston was difficult. It feels like it was 10 years ago, when it was just last summer. Her legs, her back, her weight, everything became weak. She lost all of her beautiful black hair. Everything became harder for her. By the final week, she could barely make the five-minute walk to the hospital. She couldn’t get on the radiation table without an Ativan.

Somehow, though, she made it through. Again. She didn’t complain. She didn’t break down. She was incredible. She even went to a wedding with me just a few days after finishing. When any of us would’ve been crying in a corner refusing to move; Dhanushka looked like this. She danced on a night when she could hardly stand.


And then she had a stable scan back in New York at Cornell. That’s when we decided we needed to move. Back to Manhattan. Closer to the hospital.

We had another few months of relative calm. She was on a new drug to try and keep the cancer at bay. Her walking improved with the placement of a shunt and almost daily physical therapy. Her hair began to grow back – little wisps, but something we could keep an eye on and note to ourselves as a small sign of the body healing and improving. We did cocktail-making glasses, we stayed at the W in Miami over New Years, we had a night up in the Catskill mountains, we had plans for a whole lot more.

And then, the disease that just wouldn’t go away came back to the brain and spine in March. This time things began deteriorating quickly. She lost her sight in her left eye and then began slowly losing it in her right. Her legs gradually weakened again and stopped working for her. We went from me walking with her -- holding her under her arms -- to a walker, to finally, a wheelchair.

But she still never lost that light about her. I remember coming back early from Florida in March and she opened her mom’s apartment door with a giant smile. Her left eye was off-center, not working with the other, but she was smiling. She was so happy to see me. I don’t even know if she knew. I’ll never forget that. That bright optimism was always there in these heartbreaking moments. She was always ready for a kiss or cuddle. She never felt defeated. Cancer could take a lot of things from her, but it couldn’t take her spirit. It couldn’t make her sad if she didn’t let it.

She began to sleep a lot more post-March. She had confusion for the small amounts of time she was awake. Bouts of immunotherapy and chemotherapy did nothing, potentially just causing more issues. Finally, in May, the doctors told us there wasn’t anything else they could do. We decided to leave New York to be in a bigger space for most hands-on, in-home care. It was hard leaving the city and our empty apartment behind, mostly because I knew it was probably the last time she’d be there with me.

She continued to have more trouble eating and swallowing, we eventually had her on oxygen 24/7. She was bedbound. Her voice went from strong and clear to a whisper to just mouthing words, and then, eventually, nothing.

Still, she was there waiting for kisses. She still smiled. She nodded when I asked her if she wanted me to jump in her hospital bed with her. She was still there. She was still fighting when everybody else would have given up.

Finally, after a week of unresponsiveness, she passed away. Peacefully with no pain. With everyone who loved her most at her bedside. She’s gone and it’s hard to accept that it’s real.

Life is unfair. It sucks. It’s random bull shit. She did nothing to deserve any of it. And where is she now? Is she OK? When I look at the clouds moving in the sky, I wonder if she’s behind them. When I hear the wind rustling through the trees, I wonder if that’s her telling me she’s all right.

I miss her all the time. Everything reminds me of her. Songs, movies, TV shows, food, photographs, smells, sounds, ice cream, puppies. It feels wrong seeing and doing things when she can’t. The first few days back home with my parents, I’ve almost gone into my bedroom to check my phone to see what she’s texted me. Maybe a kissy-face emoji, maybe a “hi how you?” And then I remember that she’s not here anymore.

So what do I do? Where do I go? Do I move to Miami? Do I go to Carmel by the Sea, the place we always imagined living when we were much older? What about just staying in New York? It was the place we met. A place with so many memories and dates and dinners and late-night parties. She loved it here. She loved walking up and down fifth avenue by herself, eating hit-me chocolate cake at Catch, spending a hot summer day in the Rockaways.

Maybe if I stay, those memories will always be swirling around -- they'll always be a part of me. She’ll always be a part of me. 

Maybe that’s what I’ll do.

https://www.abta.org/

12 comments:

  1. Matt, I am so sorry for you! She is a beautiful woman who loved life and loved you! What a beautiful tribute. She is watching over you. I will keep you both in my prayers. Thank you for sharing her with all of us.❤️ Ms. Deming

    ReplyDelete
  2. Hi Matt! Carol Deming sent me the letter of love �� and appreciation for your wife. The live you lived was full of endless joy, happiness and immeasurable love. Your wife was an inspiration of strength and faith; but most of all a love for you that one can't measure. Your wife is roaming the heavens above looking down on you, with an eternal light of love �� that will be carried in your heart forever. She was a gift that you will treasure, the memories everlasting. I know you will as time passes a sense of peace and acceptance of a women who brought a joy of life. Matt each and everyday my prayers and thoughts will be with you. My respect and love for you, your wife and entire family will continue for my entire life and beyond beyond. Coach Ray Behr

    ReplyDelete
  3. Thank you for sharing your story. I'm so sorry for your loss. Please get yourself all the support you need. Loss is so hard and support is so needed. I know the writing of the experience must have been therapeutic. I don't know if you are into spiritual things but finding a spiritual or concept that resonates with you can be incredibly comforting when dealing with deep loss. When nothing in this world seems to matter any more. She would want you to find comfort. Sending you and your Beloved wife love and healing energy.

    ReplyDelete
  4. Thank you so much for sharing your story for all to hear it. I knew Deg in high school and I know so many people who hold her close to their hearts and always will. You have done a remarkable job of putting Dhanushka's spirit on to this page and it will help more people than you know. Death may end a life, but the memories shared are eternal.

    ReplyDelete
  5. Dude that is the most beautiful story that I have ever read. My heart goes out to you. I just lost my mother before Christmas. I still think sometimes that its a dream then I come to realize that its not. I was sick with covid and I could not be at her bedside. I will pray for you always.

    ReplyDelete
  6. I don’t know the pain of losing a spouse, but I know the one of losing a parent (at the ripe age of 16). There’s a paragraph in here that hit directly at me, about wondering if the wind is telling you she’s ok. I relate to that quite often.

    I will pray for you that you continue to grieve and to heal, and am willing to be an objective ear if you ever need one. God bless.

    ReplyDelete
  7. Reading this in tears for you both. Wishing you the best that life can give, every day.

    ReplyDelete
  8. Matt, this moved me to tears. I don't know you personally but read your story on Satchel Paige and Hank Arron and was looking for a way to get in touch. I'm a member of NYC Veterans For Peace and the editor of a nonprofit progressive newspaper, Peace & Planet News, now out of print after six solid years due to the Corona virus, but we are starting a website to continue our work. We feel there is a lot of great sports people and stories that relate to a culture of peace and human rights. We've published stories by Dave Zirin and others. Our Readers loved it. We'd love to reprint your story. Is there some way we can be in touch? _– Tarak Kauff takauff at gmail.com Thanks. And your writing about your wife was as beautiful and moving as anything I've read. Straight from your heart. Thank you for that and thank her for the wonderful example she gave as a human being of courage and love.

    ReplyDelete
  9. Matt, Your Ron Necciai piece was so good - the best writing I've seen on MLB - that I looked up this blog to be able to write and compliment you. This article is so much better...it is in a league by itself. Your writing is a beautiful, lasting memorial to Dhanushka. Thank you.
    Peter Mark (Strasbourg, France)

    ReplyDelete
  10. Matt. I don’t know if you still read these comments. This is my story too. Different cancer…equally as rare. Equally as savage. The story about Bermuda! Made me cry. We were travel hungry, never spent a day a part, waited a lifetime for her relationship. Eternally happy. Always smiling…strongest person we know..our wives. I know the parts you left out of your stories…the quiet ones. The time when you were in the b&b alone with the thoughts of her. Sad for ourselves. True, enduring love is exceptionally rare and gone way too fast. When absolutely everything reminds us of them we know what a gift we have. The days are tough, often numbing and step by step. There’s no answer for our loss but knowing that they chose us to love…what a blessing!

    ReplyDelete
  11. Jasmine Byrd WhitingOctober 18, 2022 at 7:27 PM

    To Biology Partner,
    Matt. I’ve cried and I’ve smiled. This tribute to your wife is a reminder of how fragile this life is and how undeniably strong love can be. I kick myself every time you pop up on my IG because I was never able to take you up on hanging with the two of you in the city. However, somehow, through your words, I feel as though I’ve had the chance to still meet her. Thank you for being you Matt and for sharing this intimate look into your beautiful life together. Your wife lives on, through you.

    ReplyDelete